Update time!

Hello all, Steve here again! What a beautiful Sunday morning it is today! Starting the day slowly so figured I'd send out a little update. Continue to wait for the call. Health is holding steady right now, am up early during the week to take the kids to school, up in the afternoon to pick them up, take them to jiu jitsu, etc. Basically back to my normal duties as dad :) Now if I can just get back into the flow of doing laundry, dishes, and other household chores I think Renee would be super impressed, haha. 

These are happy, although a bit nerve wracking, days in the Lilly house. The kids are so excited for daddy to get new lungs. Overheard Anna telling Liam that when I get them I will be able to play tag, run around, jump in the trampoline, have so much fun with them. Fun I am unable to have in my current state. It made me so happy to hear the joy this new life will bring to the kids. They need it, my family needs it, Renee needs it, I need it!

So, the transplant. I figured I had several months to prepare, maybe even a year. That all changed when I received an email this week from my nurse coordinator up at USC. Am looking into double listing with Stanford, so sent her an email asking her to send my chart up north. She replied that it wouldn't be a problem. It was what she wrote after that put me into a little bit of shock, haha. She basically said that they have already received a lot of match offers for me, but that they are just waiting for that perfect set. Whoa. She is leaving the program at USC on Dec. 3rd and is hoping I get the call before she moves on. Whoa again. Of course, the wait could still end up being months, but to know that call has already been close a few times already is intense. 

So we continue to wait, continue to be awed by the love and generosity from all of you! Please keep on believing in the Steve ;)

Love, 

Steve Lilly

Here is a pic of Liam and I from yesterday, taken by my sister! The fam and I went up to Anthony's(Jessica's man) Folk Revival Festival in Long Beach. What an amazing success it was! Seriously! Liam loved it, was rocking out to all the music, jamming on his craft banjo, stomping his foot along to the beat(I call it the Strummer stomp, after the great Joe) taking bows after every song. It was so great! Even got his sister to join in towards the end. What a great family day!